January 2017 PSRs and OSRs
The Living Donor Collective: SRTR to Launch a Pilot Project to Create a Registry of Living Donors
The Scientific Registry of Transplant Recipients (SRTR), under contract with the Health Resources and Services Administration of the U.S. Department of Health and Human Services, is pleased to announce that they will launch a pilot project with 16 transplant programs that will establish a registry of living donors entitled the "Living Donor Collective," to follow long-term health outcomes after living donation.
SRTR’s plan is to establish a living donor registry in which participating transplant programs register all potential living donor candidates evaluated at their center. Data on all potential living organ donors will be submitted to SRTR at the beginning of their evaluation by the assessing transplant center, and aspects of their physical and psychosocial well-being will be followed up by SRTR. SRTR will provide support for coordination time to conduct this pilot study at each program, acknowledging that during this exploratory start-up study additional time and effort will be required to conduct the project.
This pilot project will allow SRTR to explore the logistics of enrolling potential living donors and test the possibility of direct follow-up with the registered participants without relying on OPTN data collection. All registered participants will be contacted for periodic surveys, and smaller numbers of participants will be contacted for more detailed, targeted surveys. Additional long term health outcomes will also be ascertained through linkages to various electronic data sources, including pharmacy prescription fill claims to determine outcomes such as treatment of end-stage renal disease, and complications such as diabetes, depression, and hypertension. SRTR will assess the outcome difference between the two groups for the long term effects of donation.
The pilot phase of establishing the registry is anticipated to last two years. It is projected that the first donors will be enrolled in the third or fourth quarter of 2017. Once the pilot phase is completed by the end of 2018, the registry can then be incrementally expanded to eventually include most if not all potential living donors evaluated at transplant programs in the US.
MMRF Awarded Continuation of National Organ Transplant Registry Contract
The Chronic Disease Research Group (CDRG) of the Minneapolis Medical Research Foundation (MMRF) has renewed its federal contract to operate the Scientific Registry of Transplant Recipients (SRTR). Among its key functions, the SRTR provides statistical and analytic support to the Organ Procurement and Transplantation Network (OPTN) for purposes including the formulation and evaluation of organ allocation in the United States. SRTR also reports national transplant data and conducts research on solid-organ transplantation in the U.S.
MMRF manages the SRTR under contract with the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services. The renewal marks the second contract term for the operation of the SRTR to MMRF.
The renewed contract contains a series of optional terms to extend through September 2020. MMRF, a non-profit academic research foundation headquartered in Minneapolis, MN, within the Hennepin County Medical Center (HCMC) has the third largest nonprofit medical research institution in Minnesota, ranking nationally in the top 10% of institutions receiving funding from the National Institutes of Health.
CDRG has served as the coordinating center for the Peer Kidney Care Initiative, the United States Renal Data System (USRDS), the Kidney Early Evaluation Program of the National Kidney Foundation (NKF), the North Central Donor Exchange Cooperative (a collaboration between kidney transplant centers in the Upper Midwest), and the CKD (Chronic Kidney Disease) Health Evaluation Risk Information Sharing project conducted by NKF in collaboration with the Centers for Disease Control and Prevention. CDRG has also received international recognition for its analyses of chronic disease states, including chronic kidney disease, cardiovascular disease, and diabetes.
The SRTR is directed by Bertram L. Kasiske, MD, FACP, with key assistance from Ajay K. Israni, MD, MS, Jon J. Snyder, PhD, MS and Susan Leppke, MPH. National Senior Staff members with organ-specific expertise and expertise in epidemiology, histocompatibility, biostatistics, economics, and computer modeling of allocation systems help complete the team.
Fall 2015 Program Specific Report Changes
On March 31, 2015, the UNet℠ system was updated and a number of fields were removed from the data collection system. The risk adjustment models that SRTR uses to assess transplant program performance currently include some of the elements that were removed from the data collection forms. As a result, starting during the Fall 2015 PSR release, the 'Drug-treated COPD' and 'pretransplant blood transfusion' variables have been dropped from the Kidney post-transplant modeling process, and the 'spontaneous bacterial peritonitis' and 'three or more inotropic agent' variables have been dropped from the Liver modeling building process.
Updated Liver Waiting List Calculator!
On September 9, 2015, SRTR launched an updated version of the liver waiting list calculator. The tool is designed to help liver candidates at US liver transplant programs understand potential outcomes on the waiting list. The tool provides historical outcomes for candidates on the waiting list at a liver program of choice and provides comparisons to programs in the local area, the OPTN region, and the entire nation. The updated tool allows the user to narrow results by whether the candidate has exception MELD scores, includes more educational materials designed to help the user understand the tool, and has an updated design. Explore the tool by clicking here or find the tool under the "Tools" heading at the top of the page.
Fall 2015 Program Specific Report Changes
For the fall 2015 cycle of the program-specific reports (PSRs) starting in October 2015, SRTR will use new risk-adjustment heart models to assess transplant program performance. More information can be found here: Upcoming Changes.
SRTR's New Liver Waiting List Calculator is now available!
On May 1, 2015, SRTR launched a tool to help liver candidates better understand outcomes for patients on the waiting list at liver programs in the United States. The beta version of the tool, developed at the request of OPTN's Liver and Intestinal Organ Transplantation committee, provides historical outcomes for candidates on the waiting list at a liver program of choice and provides comparisons to other programs in the local area, the OPTN region, and the entire nation. Explore the tool by clicking here or find the tool under the "Tools" heading at the top of the page.
PSR Elements Affected by UNET℠ System Changes on March 31, 2015
On March 31, 2015, the UNET℠ system was updated and a number of fields were removed from the data collection system. The risk adjustment models that SRTR uses to assess transplant program performance currently include some of the elements that were removed from the data collection forms. An explanation of what these changes mean for the risk adjustment models can be found here.
Spring 2015 Program Specific Report Changes
For the spring 2015 cycle of the program-specific reports (PSRs) starting in April 2015, SRTR will use new risk-adjustment kidney models to assess transplant program performance. More information can be found here: Upcoming Changes.
Transplant Program Specific Reports (PSRs) and OPO-Specific Reports (OSRs):
The Fall 2014 Transplant Program Specific Reports (PSRs) and OPO-Specific Reports (OSRs) are now available.
Fall 2014 Program Specific Report Changes
For the Fall 2014 cycle of the program-specific reports (PSRs) starting in October 2014, SRTR has changed to a Bayesian statistical methodology for assessing transplant program performance. More information can be found here: Upcoming Changes.
AOPO Executive Directors Award
Jon Snyder given AOPO Executive Directors Award.
January 2014, July 2013, and January 2013 Transplant Program Specific Reports (PSRs)
The January 2014, July 2013, and January 2013 Transplant Program Specific Reports (PSRs) are now available.
January 2014 Organ Procurement Organization (OPO) Reports
The January 2014 OPO-specific reports are now available.